Autism Resources in New Zealand

Discover resources made for Autistic individuals, as well as for families, support workers and teachers who want to better understand Autism and support people in their everyday life.

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Learn more about Autism

While New Zealand has a wide array of resources and support systems available for Autistic people, it can sometimes be difficult to discover the right option for your particular situation. Here you can find information on available financial help, support groups, and specialist services, as well as specific support tailored for Autistic children and young people.  

In collating this information, HealthCare NZ is not recommending any specific service or organisation. The aim is to collate available information so that individuals can make their own informed decisions. 

General Autism Resources

Preferred Autism Terminology

There are many different preferences in the Autistic Community (Autistic people) and autism community (including family, whānau, and wider support networks) for describing autism and Autistic people. Many Autistic people, as well as advocates, prefer identity-first language because it indicates that being Autistic is an inherent part of a person’s identity, not an addition to it. However, on an individual basis, it is important to be respectful of each person’s personal preference: everyone has a right to decide how they are described and when referring to an individual, we would advocate the use of that person’s preferred language. 

In te reo Māori, the word used to describe autism is takiwātanga, meaning ‘his or her own time and space’. 

For a terminology resource that has been developed by Autistic people with support from Autism New Zealand, see: Autism Terminology Guidance from the Autistic Community of Aotearoa New Zealand

Support and Resources for Autistic People

Connecting with other Autistic people

Altogether Autism hosts fortnightly Zoom groups by Autistics for Autistics, aimed at providing a safe place for connection and understanding. You can find more information about available groups on the Altogether Autism Events page

An alternative is Autism Connect, a service provided by Autism NZ. The Autism NZ website also provides information about Autistic social media spaces

Financial support

To find out what kind of financial support is available to you, your best source is Te Hiranga Tangata – Work and Income. You can see details of some of the most commonly accessed benefits below: 

Supported Living Payment is a weekly payment to help you if you have, or you are caring for someone with, a significant health condition, injury, or disability.  

Disability Allowance is a weekly payment for people who have regular, ongoing costs because of a disability. These could be visits to the doctor or hospital, medication, extra clothing, or travel.  

Tertiary education

There is a variety of support available to Autistic students. To access this support, you will usually need to provide a letter/report detailing your diagnosis and the assistance you need. Support could include access to study or rest rooms, extra time in tests, individual tutoring and/or access to a note-taking service.  

Supporting Autistic Tertiary Learners by Altogether Autism is a guide for staff at tertiary education organisations, helping them to understand the kinds of support that autistic learners need from them on their educational journey.  

For autistic students coming to the end of their study, additional support is available to support them into employment. Be. Lab offers a valuable 12-week paid internship for tertiary qualified New Zealanders living with disability, health, or mental health conditions or access needs. 

Employment

If you are looking for work and need some help, there is plenty of support available from Work and Income, such as the Employment service for people with disability or health condition

There is also an employment service specifically aimed at secondary school students with a disability or health condition, designed to help the student, their whānau and their school plan for the future and explore job and career opportunities. 

Be. Lab’s New Start Programme is a career pathway programme featuring 16 weeks paid work experience, designed for New Zealanders with access needs aged 16 and over. If you’re just starting out, or wanting a change in field or sector, this could give you the perfect step up. 

Additional Information and Support for the Autism Community

  • Autism New Zealand: A provider of services, support, education and information on autism for Autistic people as well as whānau, caregivers, and professionals. In addition to the organisation’s own resources, Autism New Zealand also provides a helpful online database of local and regional support organisations and providers on their Community Links page
  • Altogether Autism: A free, nationwide autism information and advisory service. They run workshops, publish a journal, curate resources and can provide personalised advice for free. 
  • Autistic Self Advocacy Network (ASAN / AUNZ): An advocacy organisation run by Australian and New Zealander autistic people, for autistic people. Their focus is to enable autistic citizens to achieve their full potential in society. 
  • Pasifika Autism Support Group: This support group is for Pasifika parents and carers of Autistic children, to meet with others who share similar experiences, hear from experts, and spread awareness of Autism amongst the Pacific community. 
  • Care Matters: The National Carer Learning and Wellbeing Resource Service, also known as Care Matters, provides online resources and free face-to-face workshops and events aimed at empowering and supporting carers and whānau of those eligible for disability support services. 
  • Parent to Parent: This nationwide not-for-profit organisation informs, inspires and supports families across New Zealand as they navigate their way through experiences with disability. All of Parent to Parent’s services, including Altogether Autism and Care Matters, are free and confidential. 
  • Taonga Takiwātanga: This organisation provides marae based Autism training from a Māori worldview. Created to address the absence of regular Autism education in Gisborne and the the wider Tairāwhiti region, Taonga Takiwātanga supports whānau who have a child or whānau member with Autism. 
  • Autism Services – Explore Specialist Advice: Explore Specialist Advice is funded by Whaikaha to support parents and caregivers of children diagnosed with Autism. Their behaviour support service is also available to Autistic adults. Explore’s services include: Exploring Autism (0-9 years), Teen Life (10-15 years), Targeted Parent Support (0-18 years), and Positive Behaviour Support. 
  • Waiora Tamariki: This is an innovative research programme, based out of the Pukemanu Centre at the University of Canterbury. Waiora Tamariki provides a cost-free nationwide clinical service designed to promote the health and wellbeing of Autistic children and their whānau. 
  • Library | IHC New Zealand: Located in central Wellington, the IHC library is full of resources dealing with all aspects of Autism, developmental disabilities, and other intellectual disabilities.  
  • Support and Respite for Carers: If you are supporting an Autistic person, it is important that you don’t lose sight of your own wellbeing needs. There are a range of services and subsidies available for those supporting or caring for Autistic people, many of which can be found via the preceding link to Whaikaha – Ministry of Disabled People’s support page. The support available to you will be determined by a needs assessment, which is completed through a Needs Assessment and Coordination Service (NASC). 
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Autism Resources for Children and Young People

This is where you can find a guide to many of the resources and support systems that are available in New Zealand to Autistic children/young people, and to those who make up their support network e.g., parents, whānau and caregivers. 

Ministry funded services and information

There are a range of services available which are aimed at supporting Autistic tamariki and their families. Of course, the needs of each child and family will vary over time. 

If you are looking for support, the first thing you need to do is to contact your local needs assessment coordination service (NASC). You do not need a referral; you can contact them yourself. They will usually undertake a needs assessment so that they can match support and services to your unique situation. 

Discover a needs assessment service near you

The process through which support is accessed is currently undergoing a major change. Information about this change, and about the new approach (Enabling Good Lives) which is being adopted, can be found on Whaikaha – Ministry of Disabled People’s website

For families needing financial assistance

Care givers are usually eligible to receive the Child Disability allowance. This is a fortnightly payment made to the main carer, in recognition of the extra care and attention needed for that child. The following link provides information about eligibility, amount of support available, and how you can apply. 

Autism programmes for parents and whānau

There are several funded programmes for parents and whānau: 

Explore Specialist Advice is funded by Whaikaha (Ministry of Disabled People) to provide the programmes detailed below. Parents can self-refer into these though the links provided. 

  1. Exploring Autism – Children’s Autism Support – Explore Specialist Advice 

This programme is for parents & whānau of a newly diagnosed child, aged between 0 and 9 years (up to your child’s 10th birthday).   

  1. Teen Life – Autism Support Programme – Explore Specialist Advice 

This is designed for parents/caregivers of a child aged between 10 and 15 (up to 16th birthday) who has an Autism diagnosis. Up to two family members and a supporting professional (invited by the family) can attend together.   

The Ministry of Education (Te Tāhuhu o te Mātauranga) provides the following programmes: 

  1. The Incredible Years Autism (for caregivers) 

This programme is for parents of Autistic children aged 2-5 years.  

  1. Tilting the Seesaw for Teams 

This two-day course is for Teams of family and professionals, working together to support Autistic tamariki aged 5-12 years. 

More support for Autistic children or young people and their parents/carers

  • Parent to Parent: This nationwide not-for-profit organisation informs, inspires and supports families across New Zealand as they navigate their way through experiences with disability. All of Parent to Parent’s services, including Altogether Autism and Care Matters, are free and confidential. 
  • Autism Services – Explore Specialist Advice: Explore Specialist Advice is funded by Whaikaha to support parents and caregivers of children diagnosed with Autism. Their behaviour support service is also available to Autistic adults. Explore’s services include: Exploring Autism (0-9 years), Teen Life (10-15 years), Targeted Parent Support (0-18 years), and Positive Behaviour Support. 
  • Waiora Tamariki: This is an innovative research programme, based out of the Pukemanu Centre at the University of Canterbury. Waiora Tamariki provides a cost-free nationwide clinical service designed to promote the health and wellbeing of Autistic children and their whānau. 

Education and Developmental Support

Like all parents, you will be seeking the best possible learning experiences for your child. There are a range of educational supports available to you and your child. The Ministry of Education, Te Tāhuhu o te Mātauranga website offers a range of information and guidance on supporting Autistic children and young people, but for additional educational information and support, read on.

Pre-school years

Early Intervention Services (EIS) 

Early intervention services give specialised support to parents, whānau and kaiako of children with additional learning needs. Early intervention services can be provided by Ministry of Education teams or by contracted Early Intervention providers. These specialists include: Early Intervention teachers, Kaitakawaenga (Māori cultural advisors), education support workers, psychologists, and speech-language therapists. 

Child Development Services 

Child Development Services are usually accessed through your GP by a referral to a paediatrician. This service is delivered by a team of allied health professionals with expertise in physiotherapy, speech language therapy, occupational therapy, and psychology. They provide community-based support and will work with you and your child to support their achievement of development goals. 

Autism Developmental Coordination support

In most regions there will be a Developmental Coordinator position, within the Child Development service. Sometimes referred to as an “Autism Coordinator”, this person provides a single point of contact for Autistic children and their families, and can facilitate access to appropriate support and therapy services. 

Support for your child at school

Every child and young person in New Zealand has the right to an education. No child can be denied access to education because of their diagnosis or learning needs. This right is detailed in the Education and Training Act 2020

Learning support refers to the additional support some children and young people need to engage and succeed in education. Each child’s needs are different and there are a range of supports available. To find information on the services you can access, head to the Ministry of Education (Te Tāhuhu o te Mātauranga) page: Students requiring learning support.  

Professional resources for people supporting Autistic students

Finding the Right Kind of Support for your Child

Not all therapies and interventions are equal in terms of safety, cost, and effectiveness. When choosing an intervention, it is important to know: 

a. is there quality evidence that it usually works? 

b. is there quality evidence that it is usually safe? 

The Aotearoa New Zealand Autism Guideline: He Waka Huia Takiwātanga Rau (‘the Guideline’) describes best practice on how to support autistic people in New Zealand. 

Information or advice that differs from the Guideline

If the information in the Guideline contradicts advice or information you’ve received from other sources, you should: 

  • contact your health, child development, education, mental health, or other service provider as appropriate. 
  • seek personalised information and advice through Altogether Autism, an organisation that provides information about autism/takiwātanga to the sector on behalf of Whaikaha – Ministry of Disabled People.